Granted, it was the fourth of July and I imagine many of my American friends had the day off from their lovely jobs where they get to blog. So perhaps more questions will be asked. We shall see.
Beccy (I totally knew I could count on Beccy to ask a question!) asks: ...If I were coming to Canada to holiday tell me why I should visit your part of the country (besides meeting you of course)?
I could just lead Beccy to these two posts written about Edmonton, one that she has read and one from my first month of blogging. However, I can also add to those by saying the following: -you wouldn't have to pay for a place to stay because of course you could stay here. You may want to do the cooking though, I am quite terrible at it.
- If I recall correctly, Ben likes snow. We have lots of it. Lots and lots and if I could give it away I would do so. So if you were to come to Edmonton, even though it is no where near the mountains, you could take Ben skiing, snowboarding, sledding, skating and whatever other winter activities it is that people who like winter partcipate in. Me, I would go skating in the mall. Why skate in the cold when you can do it in warmth? So what if people stand around watching you and laugh when you fall? At least I assume they laugh. I've not been since I was about 11 and my shoes were stolen and I had to walk home in neon orange socks. It was 1984.
- I'll once again point out the festivals mentioned in the 2 other posts. Summer really is the time to be here. Much fun.
- And I know you said you would need to see more than just a mall, but seriously if I were to see it for the first time I would be pretty impressed. There's a water park, the previously mentioned skating rink, an amusement park, minitaure golf, Kidtropolis (which is a mini city for kids, complete with a news station and cars to drive), a dinner theatre, bowling and if it rocks your boat there's even a shooting gallery. Plus there's shopping. And who doesn't love to shop? And the Canadian dollar is worth nothing compared to the Euro so you're getting good value out of your money. Plus, Ireland is freaking expensive and Edmonton...not so much. And Alberta is the only province that doesn't charge a Provincial Sales Tax. So you get a really, really good deal. Minus the cost of flying of course.
Did that sell you? Probably not, I'd rather be in Dublin myself!
The second question was asked by Alissa, and Chas wonders the same thing. Alissa said I would like to know just why your ex is dying at such a young age, and what part he has in Taylor & Liam's lives. And since we're talking about him, why didn't it work out to begin with?
This is a long, long one. He has Type 1 M@chado- Jo.seph disease. I've never read up about it on the internet until tonight, and I rather wish I hadn't. I have always known it was a genetic disease, and that there is a 50% chance of my 2 oldest inheriting it. I did not know until tonight that with each generation it has an earlier onset and a faster progression. The thought of Taylor or Liam with this diesase breaks my heart. Everytime one of them trips or falls I wonder if it is a sign. To know that they could get it and die before they are 40 is beyond words. I really would suggest reading the link, but to those of you who don't essentially it is the degeneration of the cerebellum leading to the inablilty to walk, talk properly and see. H was diagnosed 10 years ago this summer. He had to go to a specialist in Ontario for a diagnosis. His father dies when he was very young, in a car accident, but was obviously a carrier of the disease.
The first time I had any inkling that something might happen to H was when I had my first doctor's appointment when I was pregnant with Taylor. I was talking to his mum on the phone and mentioned that they had asked for a family history. Expecting to hear the normal things like diabetes and cancer, I was a little surprised when she said "Oh, there is some disease that run's in H's birth father's family that only affects boys where they end up in a wheelchair. We were really worried until H was 17, but he was checked out and is fine." Uh, yeah, not so much. I hold a lot of bitterness to his mother for this. She never gave H the proper information and as he said himself he never would have gotten married and had children had he known. I often wonder what Taylor will do when she is tested if the result ends up being postitive. Will she marry? Will she have children? Will she finish university? We were going to have her tested when she was 6, but she said she would rather wait until she was older. 14 or 15, she said at the time. She is not very good at dealing with her father's illness and I guess if I were to look at it through her eyes everytime I saw him I would wonder if this is what was in store for me. I wouldn't want to see my dad either in that case.
Taylor and Liam are supposed to see him once a week. Taylor usually tries to aviod going. Liam is pretty good about it. He used to live not far from us and they would see him whenever they wanted and would stay with him if I worked nights. Two years ago, his sister asked him to move in with her and her husband. This was a huge mistake. She lives on the south side and really asked him only to help her with rent. She charges him $600 of the $1000 he receives monthly. Plus, I was just informed by H's mother that J, his sister, also receives about an $1800 tax refund because of him living with her. In this same converstion I was told that J refuses to do his laundry and he has to skootch down 2 flights of stairs to do his own. He is currently on a waiting list for a home. When he moved in with her, she said she would pick the kids up every Friday and bring them home on a Sunday. That didn't last very long as she eventually told me she wouldn't have them at her house anymore because they weren't doing all the chores she required them to do (dishes, cleaning their dad's bedroom, doing his laundry and taking her then 4 year old son outside with them whenever they went out.) They were 9 and 10 ffs, they could hardly be expected to clean their dad's room and the urine bottles that went along with that job. And his laundry! Seriously, children that age do not need to know that their dad can't always make it to the bathroom on time.
I think H and I never would have worked out, even if he hadn't gotten sick. When we first split up he said it was because of his illness, and I said no, that is what kept me with you for so much longer. Had I been in love with him I could have seen this through, no matter how terrible it became. But the reality is that I never was in love with him, there were times I didn't even like him. I knew on my wedding day that I shouldn't go through with it (how cliched is that!?) but I did out of, I think, fear of being alone. I was (am) such an insecure person that I thought I would never find anyone else and I was destined to be on my own. In reality I was only 20 and probably needed to be on my own. I met him when I was 18, moved in with him 2 months later, and was married within 13 months. I gave up a year living in Belfast. Foolish, foolish! It gave me Taylor and Liam though, and they are worth everything.
I think this has officially reached longest post ever status.
05 July, 2007
The post where I answer all TWO questions that came my way
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20 comments:
I read the whole darn thing. Which means it wasn't to long.
:)
I am so sorry about your ex. That sounds like an absolute horrible disease, and I can completely understand your fear of one of your kids getting the gene or disease. And his sister sounds like a total cow.
Well, since I was off yesterday, I figure I might as well ask you a question today...
So here's mine...
How did you meet William? Do you think the two of you will ever marry? Or have you sworn off marriage all together because of your first one?
Hope that's not too personal! Feel free to only answer what you want if you don't feel comfortable answering this!
I am sorry that you ex has this horrible disease. I truly hope that neither Taylor nor Liam develop it. I cannot believe that his own sister would expect young children to clean up after their father when he cannot do it for himself. They are kids!
Oh dear,that sounds like a truly terrible situation. I have never heard of that condition, and I pray that your two kiddos don't have it!!
Wow on the ex-husband thing. Here's hoping what goes around comes around with that sick twisted sister of his. Good grief what's wrong with people. I hope the home he's waiting for have people there who will treat him right. I can't even imagine the fears you have when it comes to your children. I personally think I'd be a wreck about it.
Ok question. Tell me what makes you happy Emma. Tell me a little or tell me a lot. I want to know the things or people or places that bring a smile to your face.
wow! that is a horrible thing to live with-- for him, the children and you.
my biological mother died when I was 10 and I have the same disease that killed her.... it is a hard road to walk.
and I totally missed your post due to the holiday. you know I would have left a comment.
my ?
if you had more free time--- how would you spend it?
sorry- but I wanted a "light" question
Wow Emma that is really a scary thing to deal with. I hope the kids don't have it.
I would come up with a question but I can't think of anything right now. I'll give it some thought and maybe I'll have a few for you.
Thanks for answering my question. We don't know whther Ben would like snow because he's never seen it (that he remembers)! I'm sure he'd love it and I used to get jealous of your snow when all we had was rain and icy winds. As for me? I think I'd visit in the summer, that shopping mall sounds fantastic, all I need to do is win the lottery to pay for my tickets.
Onto your second answer (and what a good question), how sad to be living under this shadow, I guess you have to be really prepared mentally before having the children tested. J sounds like an awful person with no love for her brother who is trying to make some money out of a sad situation.
that is horrible about the disease.. so sad! The post wasn't that long.. I think you have had longer.. lol
What a frightening disease to contend with. And the idea it could pass through your children even more heartbreaking. I cannot even imagine.
Now I'll ask questions for you. And being the resident fat girl I'll ask food questions. Because I'm hungry and haven't had breakfast.
What's your fave breakfast? Lunch? Dinner? Beverage? Extreme detail please.
Share your favorite pic of each of your kidfolk. One at any age. One current.
How much cash is in your wallet this moment?
Do you say 'eh' often? (I ask because I got into a discussion with a girlfriend of mine who thinks that Canadians don't REALLY say eh. But cod knows my dad and grandma and their family did...and I freaking do because I'm a wanna be. lol.)
Tell us more about that man who resides with you. The fullgrown one. Not the child. (though I realize the two terms can intermingle when discussing significant others. ;) )
When you were a child who did you think you would be at this age? Do you remember if you expected to be wed or divorced or with kids or such a freaking awesome crafter?
Oh. Speaking of. Where do you get your inspiration for your crafts because dude. You have talent. And how long have you been such a crafty girl?
Okay I'll leave you with just those. I'd keep going but I'm way behind on blog reading this week and I gave you enough weirdness. :)
I, too was off on a little break. (Don't feel TOO bad, nice Beccy has been my only comment on my last post!) I'm really no good at questions, sorry. But since I have a (mostly) food blog, I'll ask about the best meal (food, company, etc.) you've ever had. Details, please!
I'm so sorry about the disease, how horrible for you to have that hanging over your head. I hope all turns out well with the kids.
ai yi yi what a terrible situation.
i'd ask you a question but i see you already are developing quite a backlog. so i'll ask something later, when you're least expecting it.
Oh my God... After reading your answer, I'm so sorry I asked the question! Geez, what an awful illness... I certainly pray your kids don't inherit it. (And I can totally see Taylor's reluctance in going to visit with him... I know I'd be the exact same.)
I pray your kids haven't inherited it.
I'm mad at your former MIL too now!
Your last long paragraph shocked me, only because my story is the same.
"But the reality is that I never was in love with him, there were times I didn't even like him. I knew on my wedding day that I shouldn't go through with it (how cliched is that!?) but I did out of, I think, fear of being alone. I was such an insecure person that I thought I would never find anyone else and I was destined to be on my own. In reality I was only 20 and probably needed to be on my own. I met him when I was 18..." I could have written all of that.
Good for you for breaking free. I still haven't, but I should.
I think many people could have written your last paragraph.
I know beccy and family would love Canada. having only seen such a tiny bit around Toronto I would love to go back again and see more.
It must be awful trying to live with MJD how sad for him and the children, I hope they have not inherited it.
Taylor and Liam are in my prayers --- that they won't develop or carry this disease.
It sounds a bit trite to say 'thanks for sharing your story', but thank you because well, just thank you. It's a sharp reminder to me to count my blessings. And I needed that today.
xo
Oh Emma - Am sorry to hear about that...I pray that Taylor and Liam don't carry the disease too...
It's so strange how many rare diseases are out there that most people have never heard of. I pray your kids are not carriers! Thanks for sharing with us....you seem to be handling it all pretty well though!
I was riveted - long or not.
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